Our Blog

Progress Report December 2024
Report

Progress Report December 2024

December 13, 2024
Read more
Progress Report June 2024
Report

Progress Report June 2024

June 25, 2024
Read more
Burke Energy presents: RARE
Event

Burke Energy presents: RARE

May 19, 2024
Read more
Unveiling the Stars: STAR Foundation shines bright at the World Symposium
Event

Unveiling the Stars: STAR Foundation shines bright at the World Symposium

January 31, 2024
Read more
STAR Foundation extends vital research partnership with NIH until 2025
News

STAR Foundation extends vital research partnership with NIH until 2025

January 8, 2024
Read more
Unraveling the Mysteries of SLC17A5
News

Unraveling the Mysteries of SLC17A5

September 1, 2023
Read more
Lighting the Way: The STAR Foundation Gala for Salla Disease
Event

Lighting the Way: The STAR Foundation Gala for Salla Disease

August 1, 2023
Read more
Pilot Natural History Study to Chart the Course of Disease
News

Pilot Natural History Study to Chart the Course of Disease

July 1, 2023
Read more
What is the FSASD consortium?
Resource

What is the FSASD consortium?

June 1, 2023
Read more
STAR Foundation receives prestigious Rare As One Grant from Chan Zuckerberg Initiative (CZI)
News

STAR Foundation receives prestigious Rare As One Grant from Chan Zuckerberg Initiative (CZI)

Read more
Progress Report 2018 - 2019
Report

Progress Report 2018 - 2019

Read more
Progress Report 2020
Report

Progress Report 2020

Read more
Progress Report 2021
Report

Progress Report 2021

Read more
Progress Report 2022 - 2023
Report

Progress Report 2022 - 2023

Read more
Illustration of the Salla region.