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STAR Foundation receives prestigious Rare As One Grant from Chan Zuckerberg Initiative (CZI)
News

STAR Foundation receives prestigious Rare As One Grant from Chan Zuckerberg Initiative (CZI)

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Progress Report 2024
Report

Progress Report 2024

June 25, 2024
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Burke Energy presents: RARE
Event

Burke Energy presents: RARE

May 19, 2024
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Progress Report 2018 - 2019
Report

Progress Report 2018 - 2019

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Progress Report 2020
Report

Progress Report 2020

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Progress Report 2021
Report

Progress Report 2021

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Progress Report 2022 - 2023
Report

Progress Report 2022 - 2023

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Fossen family takes part in pilot natural history study
News

Fossen family takes part in pilot natural history study

December 1, 2022
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Unveiling the Stars: STAR Foundation shines bright at the World Symposium
Event

Unveiling the Stars: STAR Foundation shines bright at the World Symposium

January 31, 2024
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STAR Foundation extends vital research partnership with NIH until 2025
News

STAR Foundation extends vital research partnership with NIH until 2025

January 8, 2024
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Apply for Anjie's Angels assistance
Ressource

Apply for Anjie's Angels assistance

November 1, 2023
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What is the FSASD consortium?
Ressource

What is the FSASD consortium?

June 1, 2023
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New RareX contact registry coming in 2024
Ressource

New RareX contact registry coming in 2024

January 1, 2024
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Unraveling the Mysteries of SLC17A5
News

Unraveling the Mysteries of SLC17A5

September 1, 2023
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Pilot Natural History Study to Chart the Course of Disease
News

Pilot Natural History Study to Chart the Course of Disease

July 1, 2023
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Lighting the Way: The STAR Foundation Gala for Salla Disease
Event

Lighting the Way: The STAR Foundation Gala for Salla Disease

August 1, 2023
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Illustration of the Salla region.